Two children walking together on a sailboat at sunset, looking toward the horizon

Special Legacy

Will your child be cared for when you no longer can? See what their financial future requires, and how to fund it.

Why Planning Matters

"What happens to my child when I'm no longer here?"

It's the question every special needs parent carries. The answer depends on the decisions you make now. One small misstep, like leaving money directly to your child, can erase their SSI and Medicaid overnight. Good planning is how you turn love into lasting security, so the life you've built for them continues just as you intended.

An Illustrative Example

How one family planned for a lifetime of care

Parents in their early fifties · A daughter, eighteen, with autism · Georgia

Their goal was simple: make sure their daughter's care would be funded for life, even if both of them were gone.

The Projection

Projected Lifetime Care Cost $3.0M
Current Funding $1.3M
Amount Still Needed $1.7M

Between an existing policy, an ABLE account, and savings, about $1.3 million was already in place, leaving roughly $1.7 million still needed.

The Plan

Working alongside the family's attorney and advisor, that gap was closed with:

The result was peace of mind, knowing that if both of them were gone, the funds to care for her would be there.

A hypothetical illustration for educational purposes. Every family's situation is different, and results vary.

Every family's situation is different. See what the numbers look like for yours.

Special Needs Resources

Life Insurance

Life insurance helps ensure a child's long-term care and financial security after a parent or caregiver passes away. The death benefit can fund a Special Needs Trust, providing ongoing support without affecting the child's eligibility for government benefits like Medicaid or SSI.

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Special Needs Trust

A Special Needs Trust is a legal tool that holds money for a person with a disability without affecting their eligibility for government benefits. It helps cover extra expenses like housing, therapy, and recreation while protecting access to programs like Medicaid and SSI.

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Letter of Intent

A Letter of Intent is a non-legal document that guides future caregivers of a person with special needs. It shares important details about the individual's daily routine, medical needs, preferences, and family values to help ensure consistent, personalized care.

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SSI

Supplemental Security Income is a federal program that provides monthly payments to individuals with disabilities who have limited income and resources. It helps cover basic needs like food, clothing, and shelter, and is often essential for families caring for a child with special needs.

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ABLE Accounts

An ABLE account is a tax-advantaged savings account for individuals with disabilities. It allows them to save for qualified expenses like housing, education, and transportation without losing eligibility for government benefits like Medicaid or SSI.

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Medicaid

Medicaid is a government program that provides essential healthcare coverage for individuals with disabilities. It helps cover costs like doctor visits, hospital care, therapy, and long-term support services, making it a vital resource for many special needs families.

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Lou Dondero, founder of Special Legacy

Meet Lou Dondero

Special Legacy started with one family. Mine.

When my nephew Benjamin was diagnosed with autism, I watched his mother carry all of it on her own, and it changed the way I saw my work. For more than 20 years I've helped families, advisors, attorneys, and trustees protect what they're leaving for the people they love. I built Special Legacy so no parent has to wonder what happens to their child after they're gone.

  • 20+ years practicing retirement, estate, and life insurance planning
  • Trusted by financial advisors and the families they serve
  • I work alongside your attorney and financial advisor, not around them
Read Lou's full story →

Start the Conversation

I work with a limited number of families at a time, so every plan gets the depth it deserves. If you're ready to put a serious plan in place, tell me a little about your family and I'll personally reach out within one business day.

Email

Care Cost Calculator

Estimate lifetime care costs for your child or grandchild with special needs — and see how your current plan stacks up.

Getting Started Step 1 of 8
Tell us about the individual
Whether you're a parent, grandparent, or guardian — this helps us use care cost data specific to their area and project costs across their lifetime.
iHow do I estimate?
If unsure, 78 is a reasonable estimate for many conditions. Your physician may be able to provide guidance.
What level of daily care is needed?
Select the option that best describes the current care situation. You can always come back and adjust.

Intermittent Support

10–15 hours per week. Help with specific tasks, appointments, and check-ins.

Part-Time Care

20–30 hours per week. Daily assistance with routines, meals, and activities.

Full-Time Care

40+ hours per week. Comprehensive daily support for most or all activities.

Therapies & Medical Costs
Out-of-pocket costs for therapies, medications, and supplies not fully covered by insurance or Medicaid.
Housing, Transportation & Equipment
Any additional costs for accessible housing, specialized transportation, or equipment that needs periodic replacement.
iExamples
Wheelchair, AAC communication device, adaptive stroller, hearing aids, orthotics, etc.
Government Benefits & Respite Care
Government benefits reduce the amount families need to fund privately. Respite care provides temporary relief for primary caregivers.
iWhat should I enter?
2026 federal max is $943/month. Leave blank if not receiving SSI.
iWhat counts?
Medicaid waivers, state supplements, or other government payments that offset care costs.
iWhat is respite care?
Respite care provides temporary relief for primary caregivers — a trained provider steps in so you can rest, handle errands, or take a break. Many states fund respite hours through Medicaid waivers. Enter the hours your family currently receives or expects to receive each month.
Current Life Insurance Coverage
Enter your current life insurance coverage. Leave blank any types you don't carry.
iWhat's this?
Permanent or whole life insurance lasts your entire lifetime — no expiration date. The death benefit is guaranteed regardless of when you pass away.
iImportant
Term coverage expires after the set period (10, 20, or 30 years). If you outlive it, this coverage ends and your funding gap reopens.
iImportant
Employer-provided coverage that typically ends if you change jobs, retire, or are laid off. Should not be relied upon as long-term funding.
Existing Savings & Trust Funds
Include any funds already set aside specifically for care — separate from your own retirement savings.
iWhat's this?
A Special Needs Trust holds assets for your loved one without affecting government benefits. Leave blank if you don't have one yet — most families don't at this stage, and that's okay.
iWhat's this?
An ABLE account lets individuals with disabilities save up to $100,000 tax-free without losing SSI or Medicaid. Leave blank if you haven't opened one.
iWhat should I include?
Include savings or investments specifically set aside for care — not your retirement funds like 401k or IRA.
iHow does this work?
Typically your estimated remaining life expectancy — this helps us project how much these savings could grow before they're needed for care. Leave blank to use current value.
Your Care Cost Projection
Lifetime Care Cost
Your Funding Gap

Annual Cost Breakdown (Today's Dollars)

Download Your Report

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Care cost estimates based on Genworth/CareScout Cost of Care Survey data. Calculations use 3% annual care cost inflation and a 2% real discount rate for present value projections. This tool provides estimates for educational and planning purposes only and does not constitute financial, legal, or medical advice.